Asleep But Still Functioning

I know that what I am about to write about is rather obvious to most of you, but for me it is novel. I equate it to having been unconscious and still functioning, walking around asleep but managing, and not being much aware of it.

Let me explain. For 2+ years I have been ill. I developed a condition that decreased my physical mobility to that of those lumbering ancient tortoises you see on the Galapagos Islands. While acutely aware of my new physical limitations, I was unaware of how much this was affecting my mental abilities. Not just my mood, but my perception and ability to do things, especially the mundane, so called easy tasks.

I noticed this as I folded my laundry this morning. For the first time in what seems forever, doing laundry seemed to go much faster and all my towels etc. were neatly folded. I marveled at the straight uniform folded pile of towels and how easy that went. A simple task that I struggled with, not just because my limbs were tired and hurting, but I was not able mentally to fold anything straight.

Perhaps this sounds ridiculous, I guess it does. As time goes by and I get better (thanks to big pharma), I am noticing how much trouble I had with mundane tasks for the past two years. Of course I was aware of how much trouble the big things were, like getting on and off a bus, sitting on low seats (ahem, toilets) and then trying to get back up, carrying groceries, even pouring a cup of tea! Physical things were exhausting and difficult to execute, even just standing for a short period of time was depleting. And managing a cane while trying to do all this was enlightening. All this gave me a new outlook and empathy for others similarly struggling.

But what I missed seeing was the mental struggle. Being depressed and moody was understandable. But losing some mental ability was startling. I was not thinking straight. My perception of the world was skewed. It was not a huge difference, perhaps not even noticed by others (or they were polite!), but now I am thinking like I used to, before this condition, without ever realizing I had stopped thinking like I used to. Very strange.

As I said before, we are very much chemical beings. The chemistry of our bodies and minds quite often determine our behaviour, thoughts and actions, and we are unaware.

I liken my experience to being sleep deprived. You think you are okay, but you are not. You do not realize how out of it you are until either someone points it out, or you discover it yourself as a blatant mistake you made in judgement and reasoning or in performing a task, much after the fact.

At any rate, I am back to being my very happy old self! I certainly missed her!

Help!

Lucky for me, I finally have a diagnosis and treatment for a condition I’ve been suffering for 2 years! I am very happy to be getting well, at last. However. . .

If you have ever been diagnosed with something, and chances are you have if you are human and alive, you have no doubt experienced a plethora of advice and horror stories that can greatly diminish any optimism you might have held.

It is the horror stories that are the worst. Advice I can ignore.

A floodgate of terror is opened when you tell someone you’ve got something. You’ll hear about how their uncles best friend got it and suffered and was never the same, died a horrible death and left his family destitute. It will always be a story that even the best fiction writers couldn’t dream up.

Sympathy? My employer asked me if I had a list of all the job sites to advertise my job, just in case they have to do without me.

Excuse me?

The best thing ever said to me, many years ago when I was very upset about an illness was, “I am so sorry you are going through this, if there is anything I can do, please let me know”.

Thank you kind and wise co-worker Judy B!

It is a phrase I have tried to adopt when faced with another’s pain.

I realize we don’t know what to say or do in terrible circumstances, but I do think the best things we can do is listen and offer to help.

What Are Vacations For?

From your employers point of view they have to pay you money to not work so they don’t find much value in vacations.  The only exception being that you come back refreshed so you can work harder.

However, if you look at this picture, this is pretty much what will happen to you if you don’t take a vacation.

You’ll seize up.

Okay – I seized up about 5 weeks before my vacation.  Poor planning on my behalf.

So now I use my vacation to get better.

Now I know what vacations are really for.  Healing.

Most vacations it takes about 2 weeks for me to totally de-stress, and then I can try to remember who I really am and what I truly enjoy doing and then go do it.  Fortunately, as I am older, I have insisted on 4 weeks vacation, so I have 2 weeks, usually, to enjoy myself.  Maybe not so much this year.

I had not anticipated a holiday in which I am trying to get well enough to go back to work – but I suspect that this is exactly what most people do in one way or another.

Since I am now the Tin Lady, not unlike the Tin Man who made the mistake of being out in the rain, I’m a wee bit stiff, and a hell of a lot slower.

My physiotherapist can appreciate this picture.

As my friend said, he can do the hundred yard dash in 3 days.

Which is probably a day less than me.

I am getting better, but I also may have a new reality.

My vacation has a new meaning – but I must admit, a better meaning.  I have learned so much from being disabled, way more than when I was an able bodied, and active person.  Valuable lessons I could not have gotten any other way.  I discovered also there are some very genuine caring people in this world who have given their time to help me, despite my pride and stubborn self!  And some have inspired me in new ways.

I have learned the true definition of resilience, and it is not what you think.  Courage is not being Wonder Woman 24/7.  It means you get out and do what you have to do while your brain is whining all the time, you’re totally despairing, you’ve lost all hope,  ready to curl up and die, you’re having pity parties, screaming in pain or yelling at your spouse or any other hapless creature in your way.  You grumble, you plod and you are miserable but you keep pressing forward.  You put yourself on auto pilot and never stop.

I am grateful for the experience and the education, but next time, I think an exotic locale with 5 star hotels might be a better choice!  My lessons will go with me even there, and enrich all my future adventures.